ME/CFS Treatment Scandal Explainer 🩺

A number of academics, experts, and journalists have characterised the treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) as a scandal, with George Monbiot going as far as calling it “the greatest medical scandal of the 21st-century”. This video provides an introduction and overview, highlighting key events in the story.

CHAPTERS
0:00 Introduction
2:20 Royal Free Outbreak
2:42 WHO Classifies ME as Neurological
2:58 Mass Hysteria Hypothesis
3:18 Ramsay Definition of ME
4:08 Chronic Fatigue Syndrome
4:45 Wessely’s Psychological Approach
5:39 Oxford Diagnostic Criteria
6:35 Wessely Lobbies the DWP
7:05 Royal Colleges Report
7:53 NHS Clinic and GP Training Video
8:50 Sophia Mirza
9:50 NICE Guideline
10:33 PACE trial
12:16 SMC Harassment Campaign
14:37 Research and Treatment Delivery
15:31 IOM Report
16:25 PACE Long-Term Follow-Up
17:03 PACE Tribunal
18:19 Merryn Crofts
19:05 CDC Removes Treatments
19:22 Treatment Surveys
19:35 UK Parliament
20:39 PACE Reanalysis
21:59 Scottish Parliament
23:05 Tuller’s Open Letter
23:25 NICE Guideline Update
25:16 Conclusion

TRANSCRIPT
https://medium.com/@abrokenbattery/me-cfs-scandal-explainer-eb4c1bfb7464#0cda

REFERENCES
https://medium.com/@abrokenbattery/me-cfs-scandal-explainer-eb4c1bfb7464#8222

DISCLAIMER
All clips are used under fair dealing for educational purposes, criticism, and review.

- Beyond the Data – Chronic Fatigue Syndrome, Centers for Disease Control YouTube channel
https://youtu.be/hRdn4A2SGic?si=nnkeEBuUl3H1xS6J
- Chronic Fatigue Syndrome, The Lancet YouTube channel
https://youtu.be/MR16NQhHdik?si=JLgsLNFh_mVj2anw
- The Treatment of Chronic Fatigue (“ME”) in Primary Care, Maudsley Publications
- PACE trial, UK Parliament TV, 20 February 2018
- ME Treatment and Research, UK Parliament TV, 21 June 2018
- Petitions Committee ME/CFS, Scottish Parliament, 7 June 2018