Inside The Dysautonomia Workbook 📘

👀 Join us for a behind-the-scenes look at our brand new resource, “The Dysautonomia Workbook: A Guide to Empowered Living!"

Workbook co-authors Joanna Behm and Madison Thornton share the inspiration behind the book and how it can help manage dysautonomia symptoms. We also get a demonstration of workbook activities from DSN Ambassador, Quinn Reller, and hear from Dysautonomia Support Network leaders, Jennifer Miller and Stephanie Heape-Reller, about how DSN grew from its start as a casual meetup to becoming an organization that's now publishing a book.

Chapters
0:00 Welcome
1:10 Interview with Co-Authors Joanna Behm and Madison Thornton
9:31 Workbook Activity Demo: Energy Assessment
17:08 Workbook Activity Demo: Balance Wheel
23:17 Workbook Activity Demo: Sleep Journal
30:54 Authors' Symptom Management Routines
35:02 Interview with DSN Leadership Jennifer Miller and Stephanie Heape-Reller

About The Dysautonomia Workbook
This groundbreaking workbook offers practical tools and strategies for anyone living with dysautonomia, including POTS and or long COVID-related autonomic dysfunction. Created by occupational therapists who themselves have dysautonomia, this resource transforms clinical knowledge into everyday solutions.

Unlike conventional medical guides, this workbook is organized around essential “areas of occupation” including work, education, health management, and daily living activities. Each section explains how dysautonomia affects specific aspects of your life and provides actionable strategies to increase your independence and well-being. Whether newly diagnosed or looking for better ways to manage long-term symptoms, this comprehensive workbook empowers you to participate more fully in the activities that matter most to you.

What’s inside:
➡️ Evidence-based approaches for managing POTS, long COVID-related dysautonomia, and other autonomic disorders
➡️ Customizable action plans and symptom tracking tools
➡️ Practical strategies for energy conservation and symptom management
➡️ Real-life solutions developed by professionals with clinical and lived experience

The workbook aligns with DSN's mission to provide community support and empower those affected by dysautonomia. "For those navigating the challenges of POTS, long COVID-related dysautonomia, or other forms of autonomic dysfunction, this workbook combines vital education with practical applications," said Stephanie Heape-Reller, President of the Board of Directors of DSN. "As both diagnosis rates and awareness increase, resources like this become essential for the growing community managing these conditions."

About the Authors
Joanna Behm, Ed.D., MS, OTR/L, is an occupational therapist with 10 years of experience across various clinical settings. She is an Associate Professor of Occupational Therapy and a dedicated advocate for individuals with dysautonomia and other chronic conditions. Drawing from both her professional expertise and personal experience as a dysautonomia patient, Joanna is committed to helping others manage their daily lives through meaningful, sustainable strategies. She serves as the Vice President of Medical Affairs at Dysautonomia Support Network, where she has been actively involved since 2013 in a variety of leadership roles.

Madison Thornton, OTD, OTR/L, is an occupational therapist with a doctorate from Belmont University’s Occupational Therapy program. She currently works in outpatient pediatrics and has additional experience across other clinical settings. In 2024, Madison completed her doctoral capstone with the Dysautonomia Support Network, where she continues to collaborate post-graduation. As both a clinician and a patient living with dysautonomia, Madison brings a unique perspective to her work. She is passionate about empowering individuals with dysautonomia to live full, meaningful lives and believes in the power of resilience and self-management when living with chronic illness.

About Dysautonomia Support Network
Dysautonomia Support Network's mission is to provide a community that empowers and supports those impacted by dysautonomia to live and feel their best. DSN works to support and empower those with dysautonomia through education, resources, and community. What began as an informal meeting in a coffee shop has grown into a thriving 50,000+ member-strong non-profit organization focused on bringing support, community, and hope to people around the world who are impacted by dysautonomia.
For more information about "The Dysautonomia Workbook" or DSN's ongoing initiatives, visit www.dysautonomiasupport.org or follow us on social media.
Facebook: https://www.facebook.com/DysautonomiaSupportNetwork
Instagram: https://www.instagram.com/dyssupport
TikTok: https://www.tiktok.com/@dyssupport
BlueSky: https://Dyssupport.bsky.social
LinkedIn: https://www.linkedin.com/company/dysautonomia-support-network
YouTube: @DysSupport